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Autism Parents: How Do You Rate on Self-Care?

Leslie Stebbins, M.Ed. M.L.I.S. By Leslie Stebbins, M.Ed. M.L.I.S. | 10/2/15 12:20 AM | About Autism | 3 Comments

As a parent our needs are often the first to be postponed or set aside. Sometimes there is no choice: we have to attend to the immediate needs of our children. But in the long run we could be doing significant damage to our physical and emotional health by not attending to our own needs. And if our health and emotional well-being is compromised this is likely to have an impact on how well we are able to care for our children.

As parents of children with ASD we often are so focused on their needs we shortchange our own, and we tend to underestimate the effect this can have on everyone around us. Skimping on our own self-care can make us irritable, exhausted, and unhappy. 

 woman-meditating-outside

Any parent can fall into the habit of neglecting his or her own needs, but for a parent raising a child with ASD the risk of self-neglect is likely to be much higher. There is a common saying, supported by research that: "If you’ve seen one child with autism, you’ve seen ONE child with autism." The same holds true for the parents of children with ASD. Each parent’s experiences can be vastly different because the symptoms ofchildren with ASD can be so different. This difference can add to the stress and loneliness that the parent may feel, because friends and relatives are unable to fully comprehend the unique challenges taking place within a particular family.

 

While there is little research on parents of children with ASD in terms of self-care issues, we do know that parents of children with ASD report feeling that their needs are not well understood, and these parents report higher levels of stress, depression, and lower levels of quality of life, even when compared to parents of children who have other types of special needs.

 

While practicing self-care is not a panacea, it can have an enormous beneficial impact onquality of life for anyone, and can be absolutely essential for the parent of a child with ASD. Use the following sets of questions to assess your own success in practicing self-care strategies and then keep reading for some techniques to help you get back on track.

 

Answer "Yes" or "No" to the following questions. Keep a tally.

 

Physical Self-Caregreen-grapes-on-a-plate

  1. Are you getting enough exercise every week? While the ideal is to get 150 minutes of physical activity each week, even a ten-minute walk or twenty sit-ups can make a difference.
  2. Are you sleeping enough hours every night? Most adults need 7 to 9 hours to feel rested.
  3. Do you have an annual physical scheduled every year and do you attend to any other medical needs you have?
  4. Are you making, for the most part, healthy eating choices and eating regular meals?
  5. Do you try to spend some time, even ten minutes, outdoors every day?

 

Emotional Self-Care

  1. Do you spend time with friends every week? Even on the phone or email?
  2. Do you have adults in your life with whom you can express your emotions and concerns at least a few times a month? This could be a therapist, partner, minister, or close friend.
  3. Do you know what makes you feel happy in terms of self-care and are you occasionally able to make time for things that make you happy? Thismight involve walking on the beach, talking with a friend, getting a massage, doing yoga, or watching a fun comedy on T.V.
  4. Are you able to carry through with ways to reduce stress in your life such as saying “no” to taking on more responsibilities than you can handle, spending less time with a family member that you do not get along with, or incorporating a five minute meditation into your daily life?
  5. Can you ask for and receive help, especially respite care for your child?

  

Spiritual Self-Care (Religious or Non-Religious) woman-gardenining-with-plants

  1. Do you find time to immerse yourself in something you enjoy: working on an art or craft, gardening, enjoying a hobby, keeping a journal?
  2. Do you attend a place of worship, meditate regularly, or find other ways to openly practice your beliefs? This could be as simple as reciting a poem or prayer before dinner.
  3. Are you able to bring humor into your day-to-day life?
  4. Do you spend time in nature?

 

Renewal and Growth

  1. Are you open to learning or trying new things: new ways of approaching a problem or new ways of understanding something?
  2. Do you have strategies in place for expanding your world? This could be improving a skill or hobby like knitting or carpentry, or reading books or watching videos on a topic that interests you outside of your every day world.
  3. Do you have dreams or long-term goals and have you planned small steps toward implementing them?

 

Ok, add up the number of "no" answers you have given.

 

If you had more than a few "no" answers, don’t despair. Most parents find it difficult to take time for themselves. 

 

Now, take a deep slow breath. I’m serious. Breathe in while counting slowly to five, breathe out while slowly counting to five. Now, look back over the list and choose one area that you want to work on, just one.

 

Next, open up a new document on your computer, or pull out a piece of paper, or a journal and answer the following questions. This is your mini self-care plan to follow for the next two weeks.

 

Questions Example
1. From the list above, what is an area that you think you could improve on? Sleep
2. What is your current practice with regard to this area? cup-of-coffeeI often stay up too late and then feel revved and have trouble falling asleep. I also drink caffeine late in the afternoon and I’m sure this contributes. Also, sometimes I sleep poorly because I worry a lot about the future.
3. What are some new strategies you could try?
  • Trying to set a realistic time for bed
  • Reading a book before I go to sleep 
  • No coffee after 2:00 p.m.
  • Write out my worries on my computer during the day, talk them over with my friend or doctor, and use this to convince myself I can stop thinking about these worries in the middle of the night.
4. Set a date two weeks from now to review these strategies. Do they need to be adjusted? Are they working? If not, try getting help from the resources listed below.
  • I've managed (for the most part!) to go to bed at a regular time and stop drinking coffee after 2:00 p.m., but I really should find better strategies for not worrying so much during the middle of the night. Many of my worries are about the future for my child, I will look for a support group or therapist that might help me work on this issue. I'm also going to try meditating for 5 minutes a day so that I can learn to clear my mind when I need to during the night.

 

Just by taking a few steps – reading this article, writing down your intentions  you can increase your feelings of hope and well-being. The very act of starting to think about self-care is, in itself, an act of self-care that can help you recognize that your needs are important and it feels better to address them.

 

While making changes to your life is never easy, taking these first few tiny steps in your plan and following through with them will help you understand how beneficial these actions can be for your mental and physical health: even a ten minute outdoor walk every day, a plan for a friend to take care of your child for 30 minutes while you take a long hot shower, or joining a parent support group can make a huge difference. Once one of your routines has been changed and is incorporated into your daily life, try to devise a plan for a second act of self-care.

 

While many of us feel guilty attending to our own needs, in fact, you will be a better parent, partner, and friend if you can sometimes make your own needs a priority in your life. Start today.

 

Shop for Health & Nutrition Products

 

Resources for Self-Care:

Research on Parents of children with ASD indicates that two essential and successful coping strategies are to find regular respite care for your child and to join a parent support group. Resources for those two items can be found here:

 

Respite Care:

 

Parent Support Groups:

 

Books on Self-Care Specifically for Parents of Children with ASD 

 

 General Resources on Self-Care

 

Leslie Stebbins, M.Ed. M.L.I.S. Leslie Stebbins has more than twenty-five years of experience in higher education with a background in library and information science, instructional design, research, and teaching. She has a Masters in Education from the Technology Innovation & Education Program at the Harvard Graduate School of Education and a Masters in Information Science from Simmons College. For twenty years she created and led information literacy and research skills programs for students and faculty at Brandeis University. Currently she is the Director for Research at Consulting Services for Education (CS4Ed). Her clients both at CS4Ed and as an independent consultant have included Harvard University, the California State University Chancellor's Office, the U.S. Department of Education, Facing History and Ourselves, Tufts University, and the Joan Ganz Cooney Center. She is the author of numerous articles and four books including Finding Reliable Information Online: Adventures of an Information Sleuth. For more about Leslie visit LeslieStebbins.com.

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